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For a short general overview of Sotos syndrome, click on the following link for our tri-fold pamphlet

Download the Adobe Acrobat version (89 K)


While the birth of a child with Sotos Syndrome is often marked by a sense of apprehension and uncertainty, parents will find an abundance of information and inspiration in this new release. This handbook is available in English, Spanish and French

A Handbook for Families (3rd edition)
By: Rebecca Rae Anderson, J.D., M.S.
Bruce A. Buehler, M.D.
G. Bradley Schaefer, M.D.

A Description of the Syndrome

  • The Newborn Period
  • Infants and Toddlers
  • Young Children
  • Adulthood
  • Differential Diagnoses
  • Genes and Heredity
  • The Role of the Schools
  • Community Resources
  • Siblings and Families
  • The Wider Community
  • Coming to Terms

Glossary of terms used

Medical and Developmental Evaluations

  • Genetics
  • Central Nervous System
  • Internal Organs
  • Muscle
  • Skeletal System
  • Endocrine
  • Hearing
  • Speech and Language
  • Eyes and Vision
  • Development and Intelligence
  • Behavioral and Psychiatric

The handbook is available in French, English and Spanish. An English DVD is available with subtitles in French, Spanish or Italian

If you wish to order the DVD and English and Spanish Handbook 

French version
Version française Adobe Acrobat (360K)

If you do not have Adobe Acrobat on your computer, click on the icon to download the reader.

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